This disturbing video captures a young girl’s heart beating rapidly outside her body because of a rare condition that would have easily killed her. Each time the youngster, believed to be Virsaviya Borun, giggles, her heart can be seen pushing further out of her chest – with only a thin layer of skin keeping it in. In the footage, a woman, believed to be her mother can be seen prodding her heart as the girl relaxes on her bed. The seven year old, originally thought to be from Russia but now living in Florida, suffers from the rare congenital condition Pentalogy of Cantrell.
The clip, uploaded on YouTube and titled ‘VirsaviyaWarrior’, lasts for 43 seconds. No further information is given. MailOnline reported on Virsaviya’s condition in 2015, throwing her into the limelight as her heartwarming story went viral. Virsaviya said at the time, “I know why I have a heart outside. Because Jesus wants to show he can make special things like me.”
Her intestines are also outside her body as a result of the condition, which occurs in an estimated 5.5 in one million live births, figures suggest. Doctors warned her mother, Dari Borun, that Virsaviya would die. The child also goes by the biblical name Bathsheba.
But seven years later, she is reportedly a lively girl who loves Beyonce, enjoys drawing ponies and attending art classes. The condition’s most severe expression is when the heart is completely or partially displaced outside the chest – known as ectopia cordis. Experts say prognosis is generally poor and depends on the severity. Most sufferers are stillborn or die within the first few days of their life.
In the footage recorded by a woman, believed to be her mother, she can be seen prodding the heart as the girl relaxes on her bed. Each time the unidentified youngster giggles, her heart can be seen pushing further out of her chest. The family originally moved to Boston after finding a doctor willing to treat her rare ailment which required surgery. But doctors warned she was unable to undergo surgery because of her high blood pressure. It is not known if her condition has changed.
Ms Borun, a single mother, previously appealed for fundraising, asking for donations to cover her daughter’s expensive medical bills. Thanks to kind-hearted strangers, she was able to raise $71,224 (£52,670). No donations have been recorded in 12 months. They were forced to move to Florida in the summer of 2015 because her life was in danger in the cold climate, sources revealed. Now, living in Hollywood – 20 miles (32km) from Miami, she doesn’t get ill as often because her heart feels warm.
At the time, it was revealed that Virsaviya did not currently attend school because of her condition. It is unsure whether her scenario has changed.